Review our patient information

We like to involve people affected by pancreatic cancer in the development of our patient information. It is an important part of our Information Standard certification.

Our patient information is vital to help families and patients through their journey. We often require people to review our information and make sure that it is clear, informative and relevant.

What does it involve?

Volunteers will be sent draft versions of new publications for their comments. We will send you the information product and a document for you to give your comments on. We take this feedback very seriously and incorporate it into the final document.

We want our information products to suit you, so your feedback is crucial for us to know if what we are producing is information you would like to have, and that it is presented in the most helpful way.

What project information do we need reviewing?

We cannot give the exact time when we need this information reviewing, the information stated below is just a rough guide on what projects we have going on and estimates of when we would like your help for reviewing them.

If you would like any more information please email our information manager at or call 0303 040 1770 during office hours.

                                             What                 When
New webpage on clinical trials. December 2018
Information Booklet 2- Surgery for operable pancreatic cancer. Types of surgery, preparing for surgery, eating after and returning home. December 2018
Information Booklet 3- Treatments to control the symptoms of Pancreatic cancer. Types of treatments and what to expect December 2018
New webpage on risks of pancreatic cancer November/December 2018
Risks poster, Facts Poster, The Pancreas Poster, Quick Guide to Pancreatic Cancer November/ December 2018
Booklet 4 Chemotherapy treatment for pancreatic cancer. Chemotherapy drugs, how they are given, managing the side effects. January 2019
Booklet 5 Diet and Nutrition for Pancreatic cancer patients. Dealing with malabsorption, advice for eating after surgery and while undergoing chemotherapy. January 2019

For other volunteering roles and opportunities please see: Community Representative, Awareness Volunteer, Fundraising and Events Volunteer and cheering and marshalling.