Policy and Campaigning

Representing pancreatic cancer patients during coronvirus

Coronavirus has affected the way we all live and work. The PCA office may be closed but we are still working hard from home to be a voice for pancreatic cancer patients during this challenging time. Find out how we are working hard to represent pancreatic cancer patients during coronvirus.

We are focused on providing the most up to date health information to help you know how to keep safe during the coronavirus outbreak. We are also working with NHS England and other organisations to advocate for pancreatic cancer and ensure that diagnosis and treatment of all cancers, remains a high priority.

What are we doing to represent pancreatic cancer patients during coronavirus?

We are working within organisations such as Cancer52 and alongside other charities to gather as much information as possible about what is happening to patients with suspected or diagnosed cancer on a local level. Once this evidence is collected it is handed over to NHS leaders and PCA are attending regular online meetings with key NHS figures and other charities.

Free patient information

We have listened to patients, relatives and carers and understand what information is useful. These booklets are easy to understand and ideal to have at hand to answer questions you may have. Order for free or read online.

The aim of these meetings is to learn as much as possible about how the NHS is managing cancer services. We are working together to identify ways that we can help to support the NHS as well as areas we are concerned about.

Further to this we have been giving feedback and advice on national guidance published by NICE (National Institute of Health and Care Excellence). Urgent guidelines for the treatment of patients with cancer has been produced for use during the coronavirus and we have been highlighting the challenges specific to pancreatic cancer patients to make sure the disease is represented, and pancreatic cancer surgery prioritised in the guidance.

As the outbreak continues, we will continue to provide up to date information, as it’s released to help you to understand any changes to how pancreatic cancer is being diagnosed and managed. As well as the governments advice for those affected by the disease.

What we are doing about reduced referrals:

Continuing our early diagnosis work

Alongside our work to support patients through coronavirus, we will continue our research into the early diagnosis of pancreatic cancer. A diagnosis in time for surgery is the best chance of surviving and as others pause their research or focus on coronavirus, we will continue our early diagnosis work.

PCA continue early diagnosis research during coronavirus

Continuing to raise awareness of the symptoms of pancreatic cancer and advising patients

Coronavirus may be dominating the news at the moment, but pancreatic cancer remains as important as ever. Although GP practises may be changing the way that they run appointments or interact with you, they are still available for you and it is vital that you see them if you have any of the symptoms of pancreatic cancer.

What should I do if I have pancreatic cancer symptoms during coronavirus?