Kingsley Squire: My Story

Kingsley Squire has sadly passed away from pancreatic cancer since sharing his experience with us. Here he talks about his experience in the hope it will help others going through similar…

IMG_0436Back in May I was swimming four and sometimes five early mornings a week in the Sidmouth pool.

Now, I am one of the 8600 new patients diagnosed with pancreatic cancer every year. Mine is inoperable and therefore terminal. Without treatment I may have six to nine months overall survival which could extend to over a year with chemotherapy. Really, it is a no brainer. Much as my wife, Monica, and family, do not want to see me suffer the side effects, I have gone for chemo because even another month will be so precious.

So why am I telling my story? Quite simply, to support the nationwide charity, Pancreatic Cancer Action, in their mission to save lives through early diagnosis by raising public awareness of the symptoms of a cancer which the late Hollywood ‘Dirty Dancing’ star, Patrick Swayze, who died from it in 2009, called the most lethal of all.

What alerted me was a call from my GP saying a blood test had shown a raised level of the pancreatic enzyme amylase. The very mention of the word had me calling up the symptoms of PC and two matched mine exactly, a back pain that was worse lying down and fatigue that was making me feel so heavy and unsteady on my legs.

So when, weeks later, a CT scan and a biopsy revealed terminal PC the diagnosis, devastating as it was, did not come as a shock because in my heart I had suspected it all along.

I had my first 30-minute chemo effusion last week dripped through a cannula in the back my hand in Cherrybrook, the treatment unit at the Royal Devon and Exeter Hospital Oncology Centre which is recognised as one of the best in the UK for cancer treatment and care.

I am being given Gemcitabine which is generally well tolerated and is given primarily because it improves quality of life for patients in my situation and can, indeed, add a short number of months to my overall survival.

Only time will tell. But since my diagnosis I have learned that pancreatic cancer, unlike prostrate, bowel and breast cancer, is not on the public radar. Many have never heard of it, let alone know any of the symptoms. Yet it has the lowest survival rate of any cancer with four patients in every five dying within a year because it is discovered too late for life saving surgery.

That is why Pancreatic Cancer Action is on a mission to save lives through earlier diagnosis by raising public awareness of the symptoms through the media and by promoting initiatives such as Pancreatic Cancer Awareness Month in November.

As of now, I’m feeling positive, ready to face whatever this cruel disease throws at me. It will not be an easy journey. You realise that when all the possible side effects of chemo are explained.

Yet there is a plus side to it all. That is the time I have to make sure everything is in order here at home and that Monica, bless her, knows how to pay the water bill and switch on the boiler! We have been married 53 years and we are in this together until death do us part. I can’t tell you what a comfort it is to reach out at night and hold her hand. You realise, too, amid the tears, how much loved you are by your children and grandchildren.

Yes, these are precious, even happy, days and together we are learning to take each one as a gift.
I have been greatly uplifted by the stories of hope my daughter, Alison, has been sending me, one in particular of a church pastor diagnosed with an aggressive stage four PC and given only six months to live. After six months of chemo treatment, and a prayer network set up by his wife, there was no sign of cancer. His doctor called it a miracle.

“You can’t give up,” he writes. “Stay strong and lean on those who love you. That is what I did. Remember, it ain’t over ’till it’s over. Keep the faith and be encouraged.”

Maybe, just maybe, there’s a miracle out there waiting for me. So, dear reader, watch this space!